You Don’t Have to Sing the Blues, New Insight About Living With Trauma.
“We have art so that we do not perish because of the truth.” Friedrich Nietzsche, Will to Power
Or, we have art so we can turn sometimes awful truths into new and even joyful life, a dialectic we can enact in
our own experiences.
This is my new understanding of how I have dealt with big trauma by turning to art. I address the personal loss
and tragedy in my wife Karen’s stroke and her survival and how writing, my artistic outlet, gave me surprising joy.
And looking back on my brother David’s even more tragic mental illness, art is there too. I found things that we
can take from these experiences individually and as a community. And in the process of looking at all this I’ve
found others who have turned trauma and tragedy into unexpected joy.
Lost and Found Connections
In early 2001 Karen was working at Northwest Airlines and we took advantage of free flight benefits for a long
weekend in Paris. It was my first trip to Europe. We flew First Class. I was in the 16th of my nearly forty years at
Legal Aid in Minneapolis. A friend was staying with our high school aged daughter and son. We were settling
ourselves at a hotel on the Left Bank in Paris that first afternoon, looking out over the lowrise buildings and
unpacking. Karen pulled out some francs to count and in a second, froze, dropping them and collapsing on the
bed. This was the beginning of our personal devastations, revolutions and recoveries. It was a very severe stroke
caused by a carotid dissection. We were 47. She was hospitalized for a month there and later, another month in
St. Paul.
I did my first-ever creative writing soon after Karen's stroke. There are some rather thudding poems.
Then over two years I wrote Lost and Found Connections in Paris, a fifty page essay. It describes the actual
experience of the stroke, the treatment, recovery, plus medical science. I cover a trans-Atlantic Lear Jet flight,
medical and family histories, the City of Paris, art, walks, strangers and much more. So, rather than dwelling s
olely in a world of loss and pain, my reaction to trauma included approaching the experience from many
dimensions and discoveries. What were these? They included:
Researching what is a stroke? What is TPA, the clot buster drug which coincidently, my brother
Phil helped design the biomedical production? Treatments and prognoses, of course. Botox for
spasm and contracture relief. Phil also worked with Botox production.
Delving into the geographic and historical context. Did my eight times-great grandmother,
Jeanne Facheux LeDuc (a forced immigrant to Quebec) stay in one of the twelve historically
preserved cells for sick women, for vagabonds and beggars (Les Filles de Roi), still sited on the
grounds of Karen’s Paris hospital, L’Hopital Pitie-Salpetriere?
Yes, it's true: Freud, James, Charcot, Binet and others who invented neurology, they all studied,
experimented, and wrote right there. Louis XIV commissioned some of those clinics still
standing on the campus.
The beds were all hand-cranked and every clinic patient was charged the same per diem.
Personal connections. As brief as a two minute conversation with a Parisian woman on a late
night subway ride about our shared tragedies in that hospital. With Karen whose first post-stroke
sentence she wrote out: “je voudrais brosser mes dentes.” (I want to brush my teeth.). Dreadful
and then better phone calls with our immediate family. Help from friends, colleagues, relatives,
friends’ families, and others, not to mention the medical staff. Donation of sick leave from new
colleagues at the airline. “We got you covered.” from my long-time and new Legal Aid colleagues.
Taking in the pleasures of the Louvre, the Seine, the cafes, Musee Carnavalet, a service at
Notre Dame, the Bibliotech Nationalle, and the streets of the city. Van Gogh, wine cheaper than
Coke at cafes. A Jules Verne store - “seulement (only)Jules Verne.”
A hospital aide who loved the movie, The Straight Story. I secured for her a signed photo from
Legal Aid’s very, very handsome eighty year old part-time secretary, and regular bit player,
Wiley Harker. He’s a good looking old cuss in a brief bar scene.
It is a very wide-ranging thing that reveals me mainly processing intellectually, but also, now that I look back on it,
responding in multiple ways and building a process of healing that took place amidship the devastation. This
creation of written art was, to some degree, a useful diversion, but it has also been the means of partial
transformation of tragedy into joy.
Tragedy to Joy
I think these are the key features of building that process of healing:
new learning,
thinking about those new things and about my existing life
uncovering connections,
building it all into a coherent story, and
getting it all out into writing.
It would have had a very different content had the tragic circumstances been much worse and our relatively
abundant resources lacking, but the learning, the considering, the explorations and the writing were powerful,
powerful forces at work.
So what is the result? Doing this work, in its many scattered parts, buffered me and allowed me to create
understanding, perspective and I still find it hard to believe, even pleasure out of a situation otherwise dominated
by pain.
I now understand, the excitement of discovery and creation are, for me, incompatible with depression.
Diversion from trauma, especially diversion into creative spheres, is a great thing. But it is through more than
just creating a diversion that we can healthily respond to trauma.
Organized religions provide buffers against trauma, buffers made of preset understandings for those who believe.
As well as rituals, which, if not always pleasurable, provide activity through which trauma is processed and
transformed into physical activity, into speech and song, into collective social activity. Ritual, I note, is a missing
aspect of my experience.
We know that expressing, describing and vanquishing trauma through music is the essence of the blues. And of
course, you don’t have to sing the blues. If you listen closely you will find pleasure and may even improve parts
of your life through music.. And now I understand that creating and singing the blues have to be very powerful
means of transforming trauma into beauty, into humor, into collective memory. I don’t sing, but I do listen.
I now think that the pain, the fear, the guilt, the devastation, the loss, the shock and other emotions can be
transformed, off-loaded, aestheticized, displayed, covered, colored, broadened, turned into objects of mystery and
subjects of investigation and made into life lessons. Not erased. But when so reborn, these very reactions to and
understandings of trauma and its wide context can all be shared and yes, even safely and beneficially preserved.
Learning and exploring and speculating on all these things - all this took me out of pure tragedy, out of only
simply mourning our losses. And so I wrote. And wrote. That long essay. Some poor poetry. And I still do.
Imagined Joy
I found another example of tragedy and art in my life. My brother David, born with a palsy, then later lived with
severe and unremitting schizophrenia for 40 years. I’ve tried to imagine that he had some joy in inner life as we
could see so little joy in life when we were with him. I got something out of it…. Or put something into it when I
wrote this.
Nabokov Knows My Brother
When with close listening
We draw meaning
From disarticulation,
His constricted life expands
And rolls along in curves and cuts
As alluvial streams trace through
The silting out
Of memories and plans,
Of Bond movies watched on DVD,
The nightly news of ’76,
His two flights west
And Alice Cooper lyrics.
Broken twigs and latticed leaves tumble loose
Pressured by his very certain reveries
Of hard-edged, dark unbounded efficacy.
Today: His guilty premonition
Of the oil train explosion,
A smoldering conspiracy,
Just across the border.
This tragedy rises, not
From a loss of meaning,
But in the raging
Floods of consequence.
David fantasized about running away to Canada and started walking the 60 km towards the border at least once.
He was self-isolated in a small long-term care home, 20 km from the border in a beautiful setting. David refused
to leave the place with any family members or staff for years, unless trundled into an ambulance. He was often
angry to see us and his various congenital speech problems and mental illness made communication difficult. I see
that writing that poem was also a small abstraction of tragedy into something else. Into art. David died in 2022.
Vladimir Nabokov wrote about parents caring for their schizophrenic son and “referential mania” where the son
excludes real people from the conspiracy, because he considers himself to be so much more intelligent
than other men. Phenomenal nature shadows him wherever he goes. Clouds in the staring sky transmit to
each other, by means of slow signs, incredibly detailed information regarding him. His in-most thoughts
are discussed at nightfall, in manual alphabet, by darkly gesticulating trees. Pebbles or stains or sun flecks
form patterns representing, in some awful way, messages that he must intercept. Everything is a cipher
and of everything he is the theme.
V. Nabokov, Symbols and Signs, The New Yorker, May 15, 1948.
Nabokov must have known someone with that illness and, if so, the writing and reading about it may have been
transformative. The actual experience of the illness and the caretaking are so stressful and often ugly - to have
provided such beauty in describing referential mania is amazing. Somehow, he seems to have known my brother.
And putting these many aspects of tragedy into words and reworking the telling was, as it turns out, my therapy.
Indeed, most important to living with and not being defeated by this trauma is the fact that there is true joy in
learning, assimilating and writing about these parts of life. For me.
And so art, my creative writing, is my opiate (c.f. Karl Marx) and my blues. And so art is a big reason that that
loss, Karen’s stroke, is a part of and not the end of, the consequential and good lives we have since lived.
Discovering Others
I find now that others have found their way to create joy in place of trauma. In the past year, as Minnesotans found
a hundred ways to resist the violent and unlawful actions of the Trump administration against people alleged to be
in the U.S. illegally and their protectors, the Singing Resistance was born. At least fifteen groups of people
combining politics and vocal art were formed throughout Minnesota and are found around the world.
The Resistance confronted masked and armed troops with song and walked through terrorized neighborhoods
singing songs of encouragement: “We get there together or never get there at all,” “We won’t let fear divide us,”
“Hold on, my dear ones.” Like the blues and like my writing, The Singing Resistance transforms trauma into
positive experience and joy and a much improved ability to meet the next challenge.
My friend Peter Kramer, architect, touches on some of these ideas in his coloring books: Color Your Way to
Mental Health (Mailing address now 156 Delos St. W., St. Paul 55107). He promises:
Research has shown that coloring reinforces and energizes your hand-to-eye-to-brain connections,
builds syncrasy, provides a milieu for repetitive non-threatening decision making, encourages focused
attention to a specific task, and produces a tangible end product. Think of coloring as talking to paper
with color as your language...It's therapy. Our coloring books will help you develop a positive self-image,
self- confidence, and a healthy mental attitude…. Coloring is a metronome that will naturally melt away
stress, level anxiety, reach into your subconscious unblocking old memories, and balance your head, your
hand and your heart.
A Belgian friend, Pierre Mertens, shows several examples of transformation in his book, Bare Together: Where
Psychotherapy, International Solidarity and Art Meet, (get it via Amazon/Kindle). Pierre relates his family’s
tragedy and triumphs, his work in psychotherapy and art and how he has led international efforts to support
families dealing with severe disabilities. For decades, he and the tiny organizations he’s led, have partnered with
families in poor nations around the world to build intimate and critical, and very local supports for families of
children with spina bifida and hydrocephalus. Proper bowel care saves lives!
I wrote to him that I think that Liesje, his daughter who lived 14 years of good life, an exceedingly hard life, with
a severe spinal cord defect, gave him a wider, more challenging and more rewarding life than he ever would have
had without her.
He confirms this:
What you write about Liesje touches the very core of why this book exists. She indeed opened a wider,
more demanding, and ultimately more meaningful life than I could ever have imagined without her.
And he says this about one-to-one caregiving:
What has become increasingly clear to me is how care itself can be a form of resistance. Resistance
against a derailed neoliberal logic, that places, efficiency, productivity, and profit above vulnerability.
Caring, taking time, staying when things become difficult – these are not soft values.
Pierre shows how international collaborators can support actions by ground-level, local people responding to
health crises often in the midst of economic, cultural, environmental and political challenges. He publishes art
online almost every day. Find out more about this international work at https://child-help.international/.
Dr. Pauline Boss, a Minnesota therapist and teacher, approaches this from another angle in her book: Ambiguous
Loss: Learning to Live with Unresolved Grief, Harvard University Press, 2000. Often traumas, or some losses are
ambiguous because they are not total, not final. Karen lives but some parts of her are lost forever. Each day can
remind us of what is lost while we also experience what remains. But if lucky, if attentive, we can see that the
loss is accompanied by gain. For example, in Karen’s case, this led to her years of volunteer work to develop
self-help aphasia groups for survivors, now led by MN Connect Aphasia Now .
Boss writes in a chapter titled: The Benefit of A Doubt:
...some people use the experience to learn how to live in difficult circumstances throughout life, balancing
the ability to grieve what is lost with what is still possible. Ambiguity can make people less dependent
on stability and more comfortable with spontaneity and change..…With ambiguous loss, the task is to let
go, to risk moving forward, even when we do not know exactly where we are going. We move to keep
from freezing in place or becoming comfortably static and we do so in ways that are life-enhancing. p.135
Whose life cannot be improved with greater comfort with spontaneity and change? Exploring the ambiguities of
loss, of trauma and the surrounding world is what I have done in my writing, without recognizing it until now.
It took me twenty-five years without a hint of insight to realize that my creative impulse or obsession or play at
this form of art was a healthy and a healing response. It turns out that it is not just me who misses how this happens.
Peter Townshend of The Who told Steven Colbert in March, 2026 that it was not until 1980s when he relaunched
Tommy in NYC and gave hundreds of interviews, that he was shocked to discover that his rock opera’s story of
abuse and exultation was strikingly autobiographical. Townshend, throughout his career, writes achingly of abuse,
acceptingly of gender fluidity, he writes of violence, the call of fame and dangers of fake news, drugs and
influencers (see Psychoderelict). Townshend both courts and condemns nihilism and fully embraces the joys of
rock and roll in his work. And his guitar playing is inimitable, excitement amplified. As an obviously committed
fan, I don’t mean any comparison of our creations, only to point out that unrealized, latent power of trauma
transformed into art, even unknowingly, is a real phenomenon.
CONCLUSION
And I will venture that there are other things that help make a good life alongside trauma, so please consider these:
naturally, the love of those sharing in the trauma,
physical exercise,
relationships with as many others as you can manage,
immersion in nature,
engagement with the tasks needed for recovery.
joining with and learning from others living with trauma; and
advocating for policies and engaging in practices that prevent and respond to tragedy.
But, again….
And again, for me….
Oh how, even in the wake of tragedy, oh how glorious, how transformative, reading and learning and writing and
art can be!
Jay Wilkinson jewilkinsoniii@gmail.com
September, 2026 ©
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